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January 31, 2014

Patient 015 Reporting from Dallas

After completing year one in the Double-blind Phase of the Clinical Trial I am now in the Open Trial. I took my third dose this morning at 6:00. 

Yesterday my support/test team and I measured progress/decline. Top right is inimitable Mary Wallace, Chief Research Nutritionist/Liaison/ Go-to/Get-done/You Name It Resource. Bottom left Clinical Trial Protocol Developer the brilliant, kind Dr Schiffmann. Bottom right is Scott Coleman with whom I do Gait Analysis testing, he blings me up and wraps me with reflective dots for room of cameras to translate into what looks like bionic Alma. Leslie who conducts the six-minute walk test isn’t shown. I am center in the Chapel room, ironic for an Ashkenazi Jew oriented disease, measuring the first dose in year two’s Open Trial Phase. 

It was a very long day. From 8:30 hotel walk in 32 degree morning and less with wind chill to Bryan Tower shuttle to Baylor Tower and Dr Schiffmann’s office. An hour with the good doctor, stair climbing, walking, tiptoeing, heel stepping, toe to toeing, arising from recline position to standing, memory and reflex testings. Each time he gives me three things to remember. Yesterday selections were green wall, grey horse, 155 East 86th Street, apt. 51. This is the first time the address has been on the east side, odd numbered even streets. I always tell him the previous ones which confirms that though physically I slightly diminish the brain is as shiny as Scott’s cranium. I walked 1,282-feet in the six minutes, up from my Halloween visit by 182-feet but down from July’s 1,311-foot record. 

Mary drove me back at 5:00. I climbed into bed, ordered room service, keyed up next episode of The Newsroom on HBOGO and hunkered in for a tomorrow’s short day, just packing up, meeting Mary for forms and another blood draw before heading to airport and home.

Thinking I’ll switch venues to a Bnb as I am over the Sheraton with lack of windows that open and hassles about the room every time. Next trip in four months is just an overnight. So why not mix it up in Dallas? The Bnb is a long three blocks to the campus but that may prove a piece of cake if this real McCoy works. Thanks for traveling with me.

Patient 015 Reporting from Dallas

After completing year one in the Double-blind Phase of the Clinical Trial I am now in the Open Trial. I took my third dose this morning at 6:00.

Yesterday my support/test team and I measured progress/decline. Top right is inimitable Mary Wallace, Chief Research Nutritionist/Liaison/ Go-to/Get-done/You Name It Resource. Bottom left Clinical Trial Protocol Developer the brilliant, kind Dr Schiffmann. Bottom right is Scott Coleman with whom I do Gait Analysis testing, he blings me up and wraps me with reflective dots for room of cameras to translate into what looks like bionic Alma. Leslie who conducts the six-minute walk test isn’t shown. I am center in the Chapel room, ironic for an Ashkenazi Jew oriented disease, measuring the first dose in year two’s Open Trial Phase.

It was a very long day. From 8:30 hotel walk in 32 degree morning and less with wind chill to Bryan Tower shuttle to Baylor Tower and Dr Schiffmann’s office. An hour with the good doctor, stair climbing, walking, tiptoeing, heel stepping, toe to toeing, arising from recline position to standing, memory and reflex testings. Each time he gives me three things to remember. Yesterday selections were green wall, grey horse, 155 East 86th Street, apt. 51. This is the first time the address has been on the east side, odd numbered even streets. I always tell him the previous ones which confirms that though physically I slightly diminish the brain is as shiny as Scott’s cranium. I walked 1,282-feet in the six minutes, up from my Halloween visit by 182-feet but down from July’s 1,311-foot record.

Mary drove me back at 5:00. I climbed into bed, ordered room service, keyed up next episode of The Newsroom on HBOGO and hunkered in for a tomorrow’s short day, just packing up, meeting Mary for forms and another blood draw before heading to airport and home.

Thinking I’ll switch venues to a Bnb as I am over the Sheraton with lack of windows that open and hassles about the room every time. Next trip in four months is just an overnight. So why not mix it up in Dallas? The Bnb is a long three blocks to the campus but that may prove a piece of cake if this real McCoy works. Thanks for traveling with me.

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